Australian Eating Disorders Research and Translation Centre Research Hub

Features

About the Centre

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About this Resource
Ethics considerations
Building relationships
Developing the research idea
Designing the study and seeking agreement
Data collection
Analyse the data and make sense of the findings
Report Writing
Sharing and translating results into action
Learning from experience

Developed from Keeping Research on Track II

First Nations Co logoWellMob logo

Artwork Credit: Christine Slabb Designs

TOGETHER

Food/body disconnection (eating disorder) doesn’t discriminate. You might be a saltwater or freshwater person. You might be from the city, the Islands or from the desert. This disconnection can affect anybody.

But TOGETHER with the right tools, the right people and understanding the underlying issues. Together we can build strength, wellbeing and confidence.

It’s about honouring First Nations ways of knowing, being, and doing. This is what research and evaluation look like for First Nations people. It represents wisdom gathered in one place, knowledge sharing and living well.

Research has not always been good for First Nations peoples. This story is about collective wisdom and cultural governance, shared with non-Indigenous people.

Researcher's Tasks

  • Explain the big research picture (the research agenda)
  • Explain the research process (methodology), roles and responsibilities
  • Negotiation and decision-making
  • Identify any employment, training and capacity-strengthening opportunities
  • Work with communities to fill out ethics approval forms to go to the Human Research Ethics Committee
  • Work with communities to see how the research can address community research priorities and aspirations

Community/organisational involvement

  • Negotiation and decision-making
  • Give feedback into appropriateness of the research agenda and methodology
  • Ask about employment, training and capacity-strengthening opportunities for Aboriginal and Torres Strait Islander people
  • Ask how the community’s research priorities and aspirations are addressed in the research
  • Assess risks and benefits of the proposed research

Governance

research paper

It puts a human face on the researched” – A qualitative evaluation of an Indigenous health research governance model

Chelsea Bond, Wendy Foley, Deborah Askew

This paper describes the Inala Aboriginal and Torres Strait Islander Community Jury for Health Research, and evaluate its usefulness as a model of Indigenous research governance within an urban Indigenous primary health care service from the perspectives of jury members and researchers.

research paper

Aboriginal and Torres Strait Islander community governance of health research: Turning principles into practice

Gwynn, J., Lock, M., Turner, N., Dennison, R., Coleman, C., Kelly, B. and Wiggers, J.

This paper examines Aboriginal community governance of two rural NSW research projects by applying principles-based criteria from two independent sources.

example of best practice

Indigenous Governance for Suicide Prevention in Aboriginal and Torres Strait Islander Communities

Professor Pat Dudgeon, Professor Tom Calma, Professor Jill Milroy, Rob McPhee, Leilani Darwin, Steffanie Von Helle and Christopher Holland

This guide focuses on PHN engagement and partnership with Aboriginal and Torres Strait Islander communities to ensure community ownership and community-led cultural adaptations of integrated approaches to suicide prevention including specific interventions.

Co-production, Co-Design, Co-everything

research paper

Development of Key Principles and Best Practices for Co-Design in Health with First Nations Australians

Anderson, K., Gall, A., Butler, T., Ngampromwongse, K., Hector, D., Turnbull, S., Lucas, K., Nehill, C., Boltong, A., Keefe, D., & Garvey, G.

This project aims to develop a set of key principles and best practices for co-design in health with First Nations Australians through a Collaborative Yarning Methodology.

guideline

Partnership Training Manual

SNAICC

Manual for supporting and sustaining genuine inter-agency partnerships in service delivery for Aboriginal and Torres Strait Islander children and families

example of best practice

Co‐designing research with Aboriginal and Torres Strait Islander consumers of mental health services, mental health workers, elders and cultural healers

Milroy, H., Kashyap, S., Collova, J., Mitchell, M., Derry, K. L., Alexi, J., Chang, E. P., & Dudgeon, P.

Manual for supporting and sustaining genuine inter-agency partnerships in service delivery for Aboriginal and Torres Strait Islander children and families

Lived Experience

research paper

The Aftermath of Aboriginal Suicide: Lived experience as the missing foundation for suicide prevention and postvention

McAlister, T. J., Darwin, L., Turner, J., Trindall, M., Ross, L., Green, R., & Shand, F

This paper aims to highlight the systemic and theoretical barriers for Aboriginal and Torres Strait Islander people who have been bereaved by suicide.

example of best practice

Indigenous Governance for Suicide Prevention in Aboriginal and Torres Strait Islander Communities

Professor Pat Dudgeon, Professor Tom Calma, Professor Jill Milroy, Rob McPhee, Leilani Darwin, Steffanie Von Helle and Christopher Holland

This guide focuses on PHN engagement and partnership with Aboriginal and Torres Strait Islander communities to ensure community ownership and community-led cultural adaptations of integrated approaches to suicide prevention including specific interventions.

example of best practice

We are not the problem; we are part of the solution: Indigenous lived experience project

Black Dog Institute

Report on the project workshops intended to recognise what Indigenous communities need to assist them in reducing the causes, prevalence, and impacts of suicide, and to hear lived experiences about suicide prevention services and programs to help verify understandings of what works and why.

handout

The National Lived Experience Workforce Development Guidelines

Mental Health Commission

As a national document, the National Development Guidelines bring together key issues from state, territory, and organisational policies and guides, with the expertise of lived experience to create a single overarching framework for consistent national development of the Lived Experience workforce.

Young People

handout

Standards for the Conduct of Aboriginal Health Research

Telethon Kids Institute

This Guideline is designed to help Institute staff to understand what actions and activities they must take throughout their research projects to meet the best practice expectations outlined by both the Institute and the National Health and Medical Research Council (NHMRC).

research paper

Development and validation of the Australian Aboriginal racial identity and self-esteem survey for 8–12 year old children (IRISE_C)

Kickett-Tucker, C., Christensen, D., Lawrence, D., Zubrick, S., Johnson, D., & Stanley, F.

This paper describes the development and validation of the IRISE_C instrument with over 250 Aboriginal children aged 8 to 12 years.